Data privacy statement
The protection of personal data is very important to us. We observe the national and international guidelines regarding data protection, in particular, the General Data Protection Regulation (GDPR), and would like you to know when we save which items of data and how we use them.
We reserve the right to modify our data protection provisions occasionally in order to ensure that they always comply with the current statutory requirements, or in order to implement changes in our services in the data privacy statement.
1. Personal data
Personal data means all information regarding personal and material circumstances related to a specific identified or identifiable natural person. This includes information such as name, address, telephone number and e-mail address, the kind of services used, as well as IP address, MAC address and user name. Information that cannot be directly associated with your actual identity, such as the length of time spent on the website or the number of users of the website, can likewise be data that can allow a person to be identified.
We collect your personal data for various reasons, such as to process service requests, to communicate with you, to organise meetings, or in association with your job application.
2. Data collection and storage
When you use one of our contact, strain submission, registration of interest, strain order, user feedback, or meeting and training course registration forms, or when you register for our newsletter, we require you to provide certain data, such as name, postal address, or e-mail address. We use these personal data exclusively for the purposes described in section 4 of this data privacy statement. Personal data is not passed on to third parties except when we are authorized or obligated to do so by law (e.g. for contractual or criminal law enforcement purposes) or when this is explicitly indicated in section 4 below. In this case, we follow the principle of data minimisation.
It may be possible for unknown parties to read unencrypted e-mails that you send us during their transport. Where appropriate, use other means of communication (telephone, encrypted e-mail or contact forms).
You have choices about the data we collect. When you are asked to provide personal data, you may decline. But if you choose not to provide data that is necessary to provide a service or feature, you may not be able to use that service or feature.
3. Data transfer
Your personal data will only be transferred in those cases necessitated by law, for example, to government agencies and public authorities for law enforcement resulting from attacks on our network infrastructure. Data will not be passed on to third parties for other purposes unless they are explicitly stated in section 4 of this data privacy statement.
4. Data policy for the different INFRAFRONTIER services
The personal data we collect, store, share, or publicly display depend on the resources, services and features you use. In general, we use the data to communicate with you, e.g. for answering general enquiries, sending service status updates, asking for feedback on user satisfaction, and informing about INFRAFRONTIER activities. Data is also used for preparing benchmarking reports to e.g. monitor the number and type of mouse strains archived or distributed, the numbers and affiliations of users, service times and user satisfaction. This data helps us to diagnose problems, and to improve our services.
We share your personal data with INFRAFRONTIER partners at EMMA nodes or mouse clinics, as appropriate, for them to provide the resources and services of our distributed research infrastructure. The INFRAFRONTIER partners listed below have access to the data by inclusion in e-mail notifications, via our internal data portal (where the partners update service progress) and on our internal benchmarking server. Database curators at CNR Monterotondo, Italy have full access to our mouse strain and user database. Employees of EMMA nodes and mouse clinics, as well as data curators, will get in touch with users directly and they will also store part of the data in their local records. These are the INFRAFRONTIER partners that have access to data:
- INFRAFRONTIER GmbH, Munich, Germany
- Helmholtz Zentrum München – Deutsches Forschungszentrum für Gesundheit und Umwelt GmbH, Munich, Germany (EMMA node)
- Institute of Molecular Genetics of the ASCR, v.v.i., Prague, Czech Republic (EMMA node)
- University of Oulu, Oulu, Finland (EMMA node)
- Centre Européen de Recherche en Biologie et Médecine – Groupement d’Intérêt Economique, Strasbourg, France (EMMA node)
- Biomedical Sciences Research Centre Alexander Fleming, Vari/Athens, Greece (EMMA node)
- Veterinärmedizinische Universität Wien, Vienna, Austria (EMMA node)
- European Molecular Biology Laboratory, Hinxton, UK (EMMA node)
- Medizinische Hochschule Hannover, Hannover, Germany
- Agencia Estatal Consejo Superior de Investigaciones Cientificas, Madrid, Spain (EMMA node)
- Centre National de la Recherche Scientifique, Orléans, France (EMMA node)
- Institute Pasteur, Paris, France
- Consiglio Nazionale delle Ricerche, Monterotondo/Rome, Italy (EMMA node, data curation)
- Netherlands Cancer Institute, Amsterdam, The Netherlands (EMMA node)
- Fundação Calouste Gulbenkian, Oeiras, Portugal (EMMA node)
- Karolinska Institutet, Stockholm, Sweden (EMMA node)
- Medical Research Council, Harwell, UK (EMMA node)
